dimanche 21 avril 2013

Vous savez que vous avez la fibrose kystique quand...

(Désolée si c'est en anglais, mais je trouvais que ça représentait bien la chose)

You know you are a CFer when...

 You do a happy dance when you hack up a huge wad of mucus, show your dad and he gives you a congratulatory high five
You know more medical terms by the age of ten than most people know their whole lives
You have your pharmacist, family doctor, CF team as numbers 1- 10 on your mobile's speed dial
You have come to the conclusion that your doctors are idiots most days and have the best working hours in the whole wide world—are they ever at work?
You have multiple scars from PICC lines, IV's and other 'experimentations' as the doctors like to call them
You are so used to getting blood drawn that you are the proverbial 'test dummy' for all the new nurse fresh out of college—you don't mind do ya?!
You have antibacterial gel in your purse, in your car, on the kitchen counter, in the bathroom, in your friend's car—hell everywhere!
You can smell smoke hundreds of feet away and go searching for the source so you can thump them upside their retarded heads!
You quite adamantly think that smokers are some of the dumbest people you know—I always love it when they walk up a flight of stairs huffing and then say they NEED a cigarette! WHAT?!
You laugh at those who bitch and moan from a common cold or worse yet stay home because of it!
You are truly sad for those cute little lab mice who must suffer from experimentations so we can have medicines to help us live—for about 1 milli-second than you jump for glee because they came up with something to help you breathe!
You can instruct the nurses how to work the IV machine at the hospital
Some of the most memorable times with your friends is hanging out and wasting time at the hospital
You have also learned who your real friends are because most people can't take the pressure of being around a person who has CF
You make people wince on a daily basis because of the sound of your cough
The checkout lady at ASDA has confidently told you that she just got over what ever I have and tamiflu worked for her, which you calmly and sarcastically say—I will make sure to tell my doctors.
You can sleep through anything
You are a multi-tasker by need. While doing you're treatments you MUST eat breakfast, do your nebulizers, homework, make-up, straighten your hair and have a conversation with your mother about your most current ache in your chest all at once or it would never get done.
You learn by the age of 15 that life is a gift and most people don't see it's pretty paper!
Many adults have commented to you that you are very wise for your age—yippee!
You laugh at your friends and their newest drama—hah! Don't we all wish it was THAT easy!

You get truly pissed at people who don't put yes as organ donors on their driver's license—what the hell are you going to do with them when you're dead, huh?!

You make peace with God at an early age.
You feel as if there is ALWAYS someone worse off than you somewhere
You are constantly on the go, realizing that time stands still for no one.
You grew up thinking that everyone in your class does machines, nebulizers, inhalers, sprays and pills for an hour or two each morning before they came to school and an hour or two after.
You are more scared of losing your loved ones, family and friends then you are of dying your self.
You truly feel that God gave you this for a reason and, damn it, you're going to make Him proud!
You realize at an extremely young age that you can buy everything but time and as a CFer that is the one thing you would love to have!
....you want to smack someone upside the head when they look at you and say, "I wish I could eat like you and still stay skinny."
You know your a CFer when you forget to take your enzymes and you know its not safe to fart.!!
When the pharmacy packs all your meds in a box or two and not just the little bags for you to pick up
..you make sure you don't go to the bathroom BEFORE you get weighed at clinic, every ounce counts!

4 commentaires:

  1. Il y a toujours une perspective différente... Ce texte permet de le constater !

    RépondreEffacer
  2. Tant que tu ne le vis pas, c"est dur de se mettre à la place des autres. Des fois, des textes comme ça le font réaliser, en effet

    RépondreEffacer
  3. Mes préférés pour moi:

    "Some of the most memorable times with your friends is hanging out and wasting time at the hospital"


    "You learn by the age of 15 that life is a gift and most people don't see it's pretty paper!"

    "You get truly pissed at people who don't put yes as organ donors on their driver's license—what the hell are you going to do with them when you're dead, huh?!"


    "You are more scared of losing your loved ones, family and friends then you are of dying your self."

    "....you want to smack someone upside the head when they look at you and say, "I wish I could eat like you and still stay skinny.""

    Mais je me suis retrouvée dans presque tout. Ça fait du bien à lire.

    RépondreEffacer
  4. Jas: "You are more scared of losing your loved ones, family and friends then you are of dying your self."

    Moi, c'est celle-là qui me parle le plus. Juste après mon encéphalite, c'était encore pire. Mais c'est évident que je me suis beaucoup reconnu dans ce petit texte, moi aussi. :)

    RépondreEffacer

Un petit commentaire, c'est agréable! Un petit commentaire, c'est bon!